Publications

Automating justice: An ethical responsibility of computational bioethics
Jul 2022 in American Journal of Bioethics, vol. 22, pp. 30-33
DOI: https://doi.org/10.1080/15265161.2022.2075051
Research output: Contribution to Journal › Comment/debate (Published)

Reconciling fragmented sectors of health research regulation: Toward an ecosystem of processual regulation
(8 pages) 7 Jan 2022 in Humanities and Social Sciences Communications, vol. 9
DOI: https://doi.org/10.1057/s41599-021-01015-1
Research output: Contribution to Journal › Article (Published)

The ethical implications of Big Data research in public health: “Big Data ethics by design” in the UK‐REACH study
1 Jan 2022 in Ethics & Human Research, vol. 44, pp. 2-17
DOI: https://doi.org/10.1002/eahr.500111
Research output: Contribution to Journal › Article (Published)

Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie
(448 pages) 31 Dec 2021
DOI: https://doi.org/10.1017/9781108903295
Research output: › Book (E-pub ahead of print)

International federation of genomic medicine databases using GA4GH standards
(5 pages) 10 Nov 2021 in Cell Genomics, vol. 1
DOI: https://doi.org/10.1016/j.xgen.2021.100032
Research output: Contribution to Journal › Article (Published)

GA4GH: International policies and standards for data sharing across genomic research and healthcare
(33 pages) 10 Nov 2021 in Cell Genomics, vol. 1
DOI: https://doi.org/10.1016/j.xgen.2021.100029
Research output: Contribution to Journal › Article (Published)

The Genetic Discrimination Observatory: Confronting novel issues in genetic discrimination
Nov 2021 in Trends in Genetics, vol. 37, pp. 951-954
DOI: https://doi.org/10.1016/j.tig.2021.08.004
Research output: Contribution to Journal › Short survey (Published)

Signalling standards for progress: Bridging the divide between a valid consent to use patient data under data protection law and the common law duty of confidentiality
(35 pages) 16 Jul 2021 in Medical Law Review, vol. 29, pp. 411–445
DOI: https://doi.org/10.1093/medlaw/fwab014
Research output: Contribution to Journal › Article (E-pub ahead of print)

Ethnicity and COVID-19 outcomes among healthcare workers in the UK: UK-REACH ethico-legal research, qualitative research on healthcare workers’ experiences and stakeholder engagement protocol
(7 pages) Jul 2021 in BMJ Open, vol. 11
DOI: https://doi.org/10.1136/bmjopen-2021-049611
Research output: Contribution to Journal › Article (Published)

The ethics of genomic medicine: Redefining values and norms in the UK and France
May 2021 in European Journal of Human Genetics, vol. 29, pp. 780–788
DOI: https://doi.org/10.1038/s41431-020-00798-2
Research output: Contribution to Journal › Article (Published)

Ethics review of big data research: What should stay and what should be reformed?
(13 pages) 30 Apr 2021 in BMC Medical Ethics, vol. 22
DOI: https://doi.org/10.1186/s12910-021-00616-4
Research output: Contribution to Journal › Article (Published)

What does it mean for a data subject to make their personal data 'manifestly public'? An analysis of GDPR Article 9(2)(e)
(18 pages) Apr 2021 in International Data Privacy Law, vol. 11, pp. 107-124
DOI: https://doi.org/10.1093/idpl/ipab005
Research output: Contribution to Journal › Article (Published)

Beyond categorisation: Refining the relationship between subjects and objects in health research regulation
18 Mar 2021 in Law, Innovation and Technology, vol. 13, pp. 194-222
DOI: https://doi.org/10.1080/17579961.2021.1898314
Research output: Contribution to Journal › Article (E-pub ahead of print)

Raising standards for global data-sharing
(2 pages) 8 Jan 2021 in Science, vol. 371, pp. 133-134
DOI: https://doi.org/10.1126/science.abf4286
Research output: Contribution to Journal › Letter (Published)

Toward better governance of human genomic data
(7 pages) 7 Jan 2021 in Nature Genetics, vol. 53, pp. 2-8
DOI: https://doi.org/10.1038/s41588-020-00742-6
Research output: Contribution to Journal › Comment/debate (Published)

The Cambridge Handbook of Health Research Regulation
(444 pages) 2021
DOI: https://doi.org/10.1017/9781108620024
Research output: › Book (Published)

Fail to prepare and you prepare to fail: The human rights consequences of the UK Government’s inaction during the COVID-19 Pandemic
2 Nov 2020 in Asian Bioethics Review
DOI: https://doi.org/10.1007/s41649-020-00151-1
Research output: Contribution to Journal › Article (E-pub ahead of print)

Co-production and managing uncertainty in health research regulation: A Delphi study
1 Jun 2020 in Health care analysis, vol. 28, pp. 99-120
DOI: https://doi.org/10.1007/s10728-019-00383-9
Research output: Contribution to Journal › Article (Published)

Should consent for data processing be privileged in health research?
May 2020 in International Data Privacy Law, vol. 10, pp. 117–131
DOI: https://doi.org/10.1093/idpl/ipz023
Research output: Contribution to Journal › Article (Published)

Establishing the International Genetic Discrimination Observatory
23 Mar 2020 in Nature Genetics, vol. 52, pp. 466-468
DOI: https://doi.org/10.1038/s41588-020-0606-5
Research output: Contribution to Journal › Comment/debate (Published)

View all 138 publications on Research Explorer

Data last updated: 05/08/2022 at 11:22